We know that the nature of myeloma means that the support you need today could be very different to the support you need tomorrow, next week or next year.
Help managing difficult feelings
You might feel: uncertain, overwhelmed, anxious, nervous, angry
Living with myeloma or a related condition can affect your emotional wellbeing and lead to feelings that are difficult to manage. You may find yourself worrying about treatments, the future, or how your life may change.
These resources can help you understand and manage those feelings, offering information, practical ideas, and emotional support to help you feel more grounded during challenging times.
Helpful resources
Speak to somebody about my situation
You might feel: isolated, worried, lonely, concerned, unsure
Sometimes it helps to talk things through with someone who can listen, give you information, or provide a little extra support. Everyone’s needs are different and may change over time, so choose the right kind of conversation for what you need today.
Helpful resources
Call our Infoline
Information, emotional support, practical advice and a listening ear when you need it.
- Talk to one of our Myeloma Information Specialists with in-depth understanding of myeloma and related conditions
- Freephone service
- No time limit, talk as long as you need to
- Completely confidential
- Anonymous if you want
Find local support
You might feel: disconnected, alone, anxious, wanting connection
Support can feel easier when it is close to home. Discover what is available in your area through local groups and events that can offer practical help, shared experience, and opportunities to connect in a safe space.
Upcoming Patient & Family Infodays
Look out for announcement of our 2027 Infodays.
Recorded Infodays
Support Groups
Meet other patients, carers and family members at your local Myeloma Support Group for emotional support, friendship and the chance to share information and experiences.
Get information about myeloma or a related condition
You might feel: confused, overwhelmed, curious, unsure
Learning more about your condition can help you understand your options and how to live well, no matter where you are in your journey. Having trusted information can answer your questions, provide reassurance, and support you in making decisions that are right for you.
Helpful resources
Myeloma
MGUS
Smouldering myeloma
AL amyloidosis
Family & carers
Tools for everyday wellbeing
You might feel: tired, unmotivated, vulnerable, determined
Looking after your wellbeing is an important part of living with myeloma or a related condition. Small, manageable steps can make a difference to how you feel physically and emotionally. Explore information and practical strategies to help you cope with challenges and find ways to support your wellbeing that work for you.
Helpful resources
Living well with myeloma Infopack
Navigate the emotional and practical challenges a myeloma diagnosis may bring. Written for people living with myeloma, it can also be helpful to read if you are supporting someone.
Support shaped by lived experience
People affected by myeloma have told us that their needs can change from day to day, and that living with uncertainty can be difficult. FLOW is the set of principles we use to respond to those experiences. It combines insights from people affected by myeloma with evidence-based psychological approaches to wellbeing, helping us design information and support that reflects people’s changing needs.
Stay in touch
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